Links

http:///www.invo.org.uk  INVOLVE-National advisory group funded by the Department of Health with the aim to promote active involvement of the public in NHS, public health and social care research. Excellent resource for information on patient and public involvement in health, social care and public health research. Provides briefing notes and publications on patient and public involvement, mailing lists, newsletters, database of research projects and support and advice.

The links page of the INVOLVE website (invo.org.uk)  includes details of Research and Development (R&D) websites and organisations that might be helpful to academics and members of the public who have an interest in active public involvement in research. These include national, local, charitable and voluntary organisations, ethics, libraries and research databases
Folk.us website is a Department of Health funded initiative, which was established to facilitate and promote meaningful and effective service user, patient and carer involvement, in all types of research relating to health and social care in North and East Devon. Folk.us seeks to promote a shift in research culture towards genuine service user and carer involvement.

Link to the consumer involvement section of the Trent RDSU website
 http://www.trentrdsu.org.uk/resources_consumer.html

http://www.guycroft.clara.net/cancer/mouth.htm This is a personal experience website of a cancer survivor

http://www.dipex.org.uk This is an excellent site that covers a wide range of diseases and presents the patient experience through video/audio and transcripts in an educational format.
http://www.cancervoices.org.uk This site provides training for patients and carers
http://www.health-disciplines.ubc.ca/DHCC/PtsVoiceReportBook.pdf a useful document that provides education guidelines
www.sheffield.nhs.uk/scsag/resources/givingcancerpatientsavoicereport.pdf a local report

PEPIN - Professional Education Public Involvement UK Network - Stories and other service user and carer voices. http://pepin-uk.net/viewforum.php?f=5&sid=cd0d7b8b84be895be027c31fbb517b05